A mother of four children with rare genetic diseases wrote a post of despair on Facebook, stating that it is abnormal for children to lack access to the medical care they need – the waiting lists for government-funded appointments stretch for years.
A mother of four children with rare genetic diseases wrote a post of despair on Facebook, stating that it is abnormal for children to lack access to the medical care they need – the waiting lists for government-funded appointments stretch for years.
The woman openly shared the harsh reality – some medical examinations her children are waiting for have been delayed for two to four years.
The mother addressed the President of Latvia with the following words: "Edgars Rinkēvičs, how long will this continue? The wait for an ophthalmologist at BKUS is 16 months. We have been waiting for a geneticist for 4 years. A psychologist – 24 months. We cannot see a psychiatrist because we can only be referred by a psychologist."
How do you think a mother can cope with all this?! Unfortunately, at BKUS they tell me… look for a paid spot… Seriously?! I have been dealing with this for 6 years, for four, because I have four children with serious health problems. How much money do I need to pay to organize everything??
How can I feel if I don’t have money for all these visits for the children for whom I have sacrificed everything for 16.5 years…! Of course, I could stop eating altogether, I have already almost given up all medications, I have given up everything, but these amounts are unrealistic…! And I feel like the worst mother in the world! Maybe you could donate part of your salary, Mr. President?
The woman also addresses the Ministry of Health: "December is my birth month, and the greatest gift would be if you could provide my children with the opportunity to see all the necessary specialists. I would like to add that my children have rare genetic diseases (each case is unique)! And we cannot wait for years for the state to cover the visits.
I thank everyone who responds, shares information, so they can be heard! And thank you for your compassion and kindness.
P.S. And yes, I work for pennies – I am my little daughter's assistant 24/7!"
